| While
confronting our passing is never going to be easy, a
surprising number of people are willing to look beyond
the fear and sorrow - and see the gift they can bestow.
Story by Lerae Rowney.
While death is an inevitable part of life - the last
great unknown - in the main it is considered taboo,
often regarded as bad luck to raise as a topic of discussion,
even in hushed, reverent and regretful tones. Like the
pink elephant in the corner of the room, we all know
it's there, but we avoid eye contact with it, or asking
anyone else if they can see it.
Death often forces both the living and dying to confront
myriad issues including pain, loss, grief, faith, spirituality,
regrets, and yes, even finances. But while most of us
still shy away from the subject because of the fear
it instils in us, there are many others who are prepared
to confront their mortality, at least in this earthly
cycle of life. These are the donors - those who want
to help others directly through organ donation, or humanity
in general through donating their whole body to science.
Surely, they would argue, this is the ultimate gift
we can offer humankind.
The most common reasons cited for wanting to donate
one's body (whether erroneous or not) are:
- Being of benefit to science through education and
research - the humanist approach
- Creating a positive (education) out of a negative
(death)
- Being against vivisection or testing of laboratory
animals
- Being proactive in death as you may be in life,
or just to be "different"
- Environmental concerns regarding burial and cremation
- Not wanting the "fuss" of a "normal"
or "typical" funeral, whether to spare family
from difficult decisions or unnecessary grief or even,
pragmatically, that it saves you or your family the
cost of burial or cremation.
A word of warning: if you thought you could donate
whatever organs and tissues that could be useful for
transplant and then "leave the rest to science",
think again. You can be an organ donor or a body donor,
but not both. Surprised? So was I.
Most of Australia's states and territories have at
least one body donation (or bequest) program, and all
are operated by the medical faculties within universities.
Several more universities without such medical programs
are licensed to receive cadavers for the teaching of
anatomy and human biology to health professionals.
So how do you register here in Australia, and what
happens after your death? What are you actually consenting
to? What rights does your family have? And will your
body even be deemed suitable? The following is a general
guide only, as each state and territory has its own
Anatomy Act (more on this later), and each donation
program differs slightly.
Practicalities versus Realities
All body bequest programs in Australia share a few commonalities.
Your body:
- Must be whole - with no organs or tissue removed
(except, in most circumstances, the corneas) for donation,
or amputation. "Routine" organ removal (eg
tonsils, appendix, gall bladder) is fine
- Must not have undergone autopsy or embalming
- Must not have had a recent operation
- Must not be obese or emaciated
- Must not have been significantly altered by medical
conditions or procedures In addition, you will be
rejected if you have certain communicable diseases
including Creutzfeld Jacob Disease (Mad Cow), widespread
cancer, jaundice or dementia, or have any conditions
that would prevent effective embalming. Clearly, as
very few young people die of natural causes and are
therefore autopsied to find the cause of death, almost
without exception, accepted bodies are those of elderly
people.
The reason an autopsied cadaver cannot be accepted
is that during autopsy, the main blood vessels are severed,
preventing the embalming fluid from accessing all body
tissues. This fluid - which is mainly formaldehyde to
"fix" the body tissues and prevent decomposition,
and phenol as a mould retardant - is normally gravity
fed into a major artery, allowing it to flow through
the entire circulatory system and into the tissues.
By contrast, plastination, replaces the natural body
fluids with polymer (either rubber or epoxy resin).
Invented by German anatomist Gunter von Hagens, plastination
has many health and educational benefits. The specimens
are safer and easier to handle as they are completely
dry and there are no chemical fumes, and gloves need
not be worn. More detail can be seen and felt as specimens
can be freely touched and handled.
You may be familiar with von Hagens' travelling exhibition,
Body Worlds - The Anatomical Exhibition of Real Human
Bodies, which graphically and controversially displays
partially and fully dissected human bodies.
The time limit for body collection/delivery to a university
varies. Generally, it is between 24 and 72 hours after
death. Participating universities pay for collection
in the metropolitan area, though this may be deemed
a 40km radius in some programs and up to 100km in others.
So does the university have carte blanche over your
physical remains, or can you stipulate what can and
can't be done? While consent is usually generalised
as "dissection and retention for teaching purposes",
most programs allow you to specify some restrictions.
Your anonymity is assured, along with respect and dignity,
by all programs.
All human tissue, even that not used, is labelled and
preserved or frozen so eventually all of the donor can
be buried or cremated (that's the donor's choice) together
- except any percentage that may, by law, be kept indefinitely
unless you stipulate otherwise.
Following your death, your family and friends can still
hold a memorial service for you just like a "normal"
funeral, simply minus your body. Most bequest programs
offer a regular donor memorial service (some yearly,
others every two or three years). Generally, except
in the case of a few universities offering a choice
of two programs, your remains are not returned to your
family. They need to realise, and so do you, that when
you are accepted by a program, it effectively is the
end of any physical contact by those you love with your
remains.
Your next of kin will, of course, be notified of your
burial or cremation in due course, but this will not
be for several years. The university pays for a simple
burial or cremation, and some programs will allow donor
ashes to be released to the family.
Dissecting the Benefits
Gary Whittaker, an anatomist and plastinator with 20
years of experience, says the educational benefits of
being able to prepare and study human specimens are
immensely valuable.
Dissection and preservation of an embalmed cadaver
takes several weeks, and usually months, to complete.
While plastination takes far longer, both processes
involve a great deal of care, skill and respect.
Plastination is gaining support in Australia, though
Whittaker concedes the scope is far from ideal as the
industry here cannot process a whole body, and the time
and effort required is somewhat undermined by the short
time limits imposed on universities for the retention
of human remains (usually between three and eight years).
"Many students primarily learn their anatomy from
already dissected material, which has been prepared
by staff or experienced anatomists. Only a small number
of students have the opportunity to dissect, and only
staff and students are allowed to view specimens and
procedures," says Whittaker. "Staff and students
take a great deal of pride in their work. It's almost
an art. It seems bizarre to call it that but good dissection
enhances students' learning. And it's no easy feat."
Neither is tiptoeing through the minefield of legal,
moral and ethical issues, particularly regarding consent.
Does Whittaker agree that consent forms could and should
be more specific? "Absolutely, because at the moment
the consent is specifically for having your body used
for educational purposes, but does this extend to display,
to being photographed, to being taken across your state
borders? It's a grey area. "Also, many people want
to be an organ donor and body donor, but this simply
isn't possible now."
Whittaker agrees current restrictive regulations create
a Catch 22 scenario: yes, they protect specimens from
being gawked at by Joe Public, yet being open and transparent
would encourage more donations and debunk urban myths
regarding what goes on behind laboratory doors. And
with student numbers in anatomy courses increasing dramatically,
obviously more specimens would be helpful.
He suggests public "open days" to demystify
the process, but realises this is a difficult area in
terms of current consent and privacy issues. At the
very least, Whittaker advocates tours of facilities
for registered donors. But with each state and territory
having its own Anatomy Act, any consensus or expansion
of current laws seems unlikely.
A national Act and program, coordinated through Medicare
(since we all have to be registered with Medicare, and
it is this body that manages the Australian Donor Register)
seems the logical way forward, yet our (until recently)
Federal Health Minister Tony Abbott had not responded
to such calls from within the science and medical communities.
"Certainly a national Anatomy Act would benefit
all concerned. Currently, each time a state or territory
modifies its Act, it becomes even more unique - not
unifying the states at all," says Whittaker.
So Be Prepared
Study closely the programs offered in your state or
territory. Choose a body bequest program and register.
Tell your family and friends, and your GP. Keep a signed
copy of your body donation agreement (consent form)
with your will. All body bequest programs can only assess
your suitability after your death, so make a contingency
plan in case your body is deemed unsuitable, so that
your loved ones know how and where you wish to be buried
or cremated. In other words, prepare for donation but
plan your funeral, too. You may also wish to opt for
organ donation in the event your body is deemed unsuitable.
Or, if your preference is organ donation, you may like
to register for body donation should you not be suitable
for organ or tissue retrieval. At the end of this life,
may we all have lived well, made each day count, and
then died well - or, at least, well prepared.
The Gift of Life
According to Medicare Australia, the Federal Government
department that manages organ and tissue donation, more
than 30,000 Australians have been donor recipients in
the past 60 years. Organs that can be donated include
the heart, kidneys, lungs, liver and pancreas. Tissues
suitable for donation include eye (corneas), bone, skin
and heart valves.
Please note that whereas previously, in order to register
as an organ donor, you simply had to tick the requisite
box on your driver's licence renewal form and "Organ
Donor" would be printed on your new licence, donors
are now are required to fill in and sign the appropriate
Medicare form in the back of the Australian Organ Donor
Register booklet (Sign on to save lives) and lodge it
with Medicare. You will then be issued with a Donor
Card, which you should keep in your wallet or purse.
For a copy of the booklet, pop into any Medicare centre,
phone 1800 777 203, log onto www.medicareaustralia.gov.au
or email aodr@midicareaustralia.gov.au
There are several specific organ and tissue donor programs
operating in Australia, but it is vital that you register
your consent to be an organ and/or tissue donor on the
Australian Organ Donor Register as it is the only national
register.
While it's actually quite rare that our organs and
tissues are viable for transplant, unless we die in
an intensive care unit (as organs must be harvested
while the blood is still circulating), organs may still
be suitable for medical research.
Anything but Green
Sadly, if you think donating your body is a green option,
think again. Eventually, your remains will be buried
or cremated - with all the inherent problems including
chemicals from the embalming fluid and coffin veneer
leaching into the soil and water table, or being released
in toxic smoke from cremation ovens. You can read Vanessa
Murray's excellent article, "Pushing up Daisies"
on the NOVA website for an overview of the terrible
ecological cost of "traditional" burials and
cremations, and eco-friendly alternatives: See www.novamagazine.com.au
and follow the link to articles (Past Issues 2006, 13.4).
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