| Coeliac
sufferer Kirsty Stuart recently returned to live in
the UK - and found the diversity and transparency of
gluten free food choices much more to her taste. With
at least one in 250 people with coeliac disease (pronounced
seeliac) in Australia and one in 100 people in the UK,
and a culture of massive under diagnosis in both countries,
it's becoming an increasing health issue. Anecdotally-speaking,
ask around and chances are that most of your friends
and family will know someone with the disease.
If you haven't heard of it, coeliac disease is a gastrointestinal
disease, predominantly found in Caucasians (it affects
approximately one in 260 Caucasians worldwide). It's
an autoimmune disease that is a lifelong condition affecting
the whole body.
Years ago, coeliac disease was thought to be a rare
condition, but in recent years the general consensus
is that it's quite common, with many people not realising
they have it.
In a nutshell, gluten (a protein found in wheat, rye,
barley and oats) damages the gut, which prevents normal
digestion and absorption of food including nutrients,
protein, fat, carbohydrate, vitamins and minerals.
If undetected, in the long term it can lead to health
issues such as anaemia, osteoporosis and a greater chance
of developing a cancer somewhere in the gastrointestinal
tract, especially in the small intestine.
People with coeliac disease are born with the genes
(there is an increased risk of 1 in 10 when coeliac
disease exists in a family) and the symptoms can be
triggered at any time in their life. More women are
diagnosed than men and the most common age of diagnosis
is 50.
It's a strange disease, where symptoms can include
fatigue, anaemia, stomach pains, bloating, vomiting
and mouth ulcers - or none at all. It's diagnosed via
a simple blood test, then a gut biopsy (a tube with
a camera passed down your throat into your stomach so
damage can be assessed) under sedation. If you suspect
you may have coeliac disease, never change your diet
until you have a diagnosis as it can skew the result.
The good news is that it's relatively easy to treat
- just eat a gluten free diet for life. At face value,
this seems pretty easy. There are plenty of naturally
gluten free foods including meat, fish, milk, butter,
cheese, fruit, vegetables, legumes and seeds. However,
considering our convenience packaged food culture, it's
a lot trickier in practice.
At present, food labels in Australia are difficult
to decipher without a degree in nutrition - a fact that
is much discussed in NOVA articles. First, the uninitiated
must understand that when you pick up a product from
a supermarket shelf and read the ingredients list to
see if that product contains gluten, you are not just
looking for the word "gluten". Gluten comes
in many forms, for example, thickeners, 1400-1450, numbers,
colours, flavours, maltodextrin, malt, malt extract,
hydrolysed vegetable protein - you get the picture.
There are way too many for the average person to learn.
Unfortunately, many people with coeliac disease (and
the friends and family members who occasionally cook
for them) end up picking up a product, looking at the
label and seeing a host of numbers, colours, thickeners
and so on and have no idea whether those ingredients
contain gluten or not and end up putting it straight
back on the shelf. With that in mind, it's not surprising
that the "free from" ranges are the fastest
growing supermarket products in terms of demand.
After moving to the UK recently, I discovered that,
as a coeliac sufferer, shopping and eating is a hell
of a lot easier than it is in Australia. Why? For starters,
it's free to join Coeliac UK (www.coeliac.uk) - a charity
that is working to improve the lives of people with
coeliac disease through support, campaigning and research.
Anyone with coeliac disease can join and so far there
are 70,000 members with 600 new members joining every
month. There's a free dietetic and food helpline, leaflets,
books and 96 voluntary groups you can elect to join
to get advice, support and meet people who understand
- which is especially important if you're newly diagnosed.
Coeliac UK produces an excellent annual 350 page Food
and Drink Directory that lists around 11,000 foods from
tins of soup to ready meals under individual supermarket
headings so you know exactly where to buy it.
In addition to this, more and more UK food manufacturers
are putting gluten free symbols on their foods and many
supermarkets, notably Tesco, have an entire "free
from" range which offers gluten free food such
as pasta, biscuits, bread and so on.
The good news for coeliac sufferers in the UK (or overseas
visitors) is that all food packaging must now comply
with the EU Regulations that came into force in November
2005. This means that any packaged food that contains
gluten now has to specify this on the pack, either in
an allergen advice box or in the ingredients list.
Chief Executive of Coeliac UK, Sarah Sleet, agrees
that it's a "massive step forward". "The
bottom line is increased transparency for anyone shopping,"
she explains. "Now gluten must be labelled as 'gluten'."
Quite rightly so. As consumers, we are entitled to
know exactly what we are eating - in clear, simple terminology.
Tesco supermarket in the UK, for example, (the most
gluten free friendly supermarket according to Coeliac
UK) has hit the nail right on the head in how they provide
this information to the consumer.
Every Tesco product has a section on their labels called
"allergens". Halleluiah! It makes eating gluten
free so simple - the allergen box either lists "gluten"
under allergens or it doesn't. That way you - or anyone
else who has invited you to dinner - can pick up any
item and see at a glance whether it contains gluten.
Blissfully easy!
Thanks to this new labelling law, living in the UK
means that a whole new world of food has opened up to
me. Take bacon and ham, for instance. In my local supermarket
in Australia, most of the bacon and ham had a long complicated
ingredient list with all manner of scary gluten infested
ingredients and I had to buy a special brand of gluten
free ham and bacon that cost a fortune compared to "normal"
versions. Over here, ham and bacon seem to have a lot
less rubbish in them and refreshingly are, well, just
plain old ham and bacon.
This can be partly attributed to the fact that Coeliac
UK has been working with retailers to try and avoid
gluten in their products in the first place. "The
idea is that they don't design it in to the product
if at all possible," says Sleet. "Now major
retailers are thinking at the beginning of the product
development process - does it contain an allergen and
if so, does it have to? So the end result is that now
you don't see the amount of rubbish you used to see
in food."
Another interesting bonus the UK has over Australia
is that if you are diagnosed with coeliac disease you
can get gluten free food on prescription from your doctor.
A prescription (costing around £6) will get you
a month's supply of gluten free pasta, bread, or biscuits
and so on which goes a long way to help. The cost of
gluten free food in my experience in Australia is generally
a lot higher than ordinary food - a loaf of gluten free
bread baked locally costs around $6. What's more, for
that money, the actual slice sizes are much smaller
and the size of the loaf itself is almost half the size
of a normal loaf. In addition, another pleasant surprise
is that the cost of gluten free food in the UK is pretty
much the same as ordinary food.
When it comes to eating out in restaurants - as every
coeliac sufferer will attest - it's a whole different
ball game. Contamination is a huge issue, occurring
via using breadboards, utensils and foodstuffs like
jam and butter that have come into contact with food
containing gluten. It's not uncommon to see in cafes,
for example, gluten free cakes or muffins sitting side
by side - and often touching - cakes that aren't gluten
free. This is a huge no no. There's no point in caf
owners ordering in gluten free food if it's contaminated
with food that contains gluten and we can't eat it!
What hasn't helped the coeliac cause is that one of
the latest fad diets to come out of the US is all about
eating gluten free - so there's the risk that some restaurant
owners and staff may assume when you ask if something
from the menu is gluten free that it's not a medical
condition and, accordingly, don't take your request
seriously.
Another scenario coeliac disease sufferers may, unfortunately,
be only too familiar with is when frazzled chefs are
too busy to take the time to explain the ingredients
and insist you "trust them". Too many times
to mention, after insisting I be told the ingredients,
it turns out that their knowledge of gluten is limited
and the meal is not gluten free as promised. Had I "trusted"
those chefs, I would have been very sick.
Busy chefs and hectic kitchens are totally understandable.
The easy answer is for restaurants and cafes to offer
a couple of gluten free items on their menu - just as
they would always include a vegetarian option. Most
of the time, they will probably already have a gluten
free option or two - so all they have to do is label
it clearly on the menu. That way, every time customers
ask for gluten free - or wheat free meals - it won't
take up the chef's valuable time in a busy kitchen.
It's also interesting to note that although one person
might have coeliac disease, every time that person goes
out for a meal with family and friends, the restaurant
they choose to eat in is invariably the one where the
coeliac sufferer can eat.
Some forward-thinking restaurants and cafes have already
caught onto the fact that the "free from"
market is burgeoning world wide and that offering tasty
gluten free meals (not just a salad) - attracts a lot
more customers. "Bon appetit" to that!
|